Advocates inform concertgoers about the affliction that killed Woody Guthrie: Huntington's Disease
The hereditary brain disorder known as Huntington âs Disease afflicts about 1 in every 10,000 people in the U.S. Thatâs according to the Huntington âs Disease Society of America.
Local representatives passed out information about medical research and genetic testing for Huntingtonâs at last Saturdayâs Woody Guthrie 100th birthday celebration hosted by WMNF.
n the 1960s, Guthrie died of complications resulting from Huntingtonâs.
WMNF spoke with Marilyn McCloskey, president of the Central Florida affiliate of the Huntingtonâs Disease Society of America at Skipperâs Smokehouse in between music sets, so thereâs a little bit of background noise.
âMy name is Marilyn McCloskey, president of the Central Florida affiliate of the Huntingtonâs Disease.â
âWhat does your group do?â
âWe are the Central Florida affiliate and we raise awareness and support for the Huntingtonâs disease from Orlando to the Tampa Bay to Gainesville down to Bradenton.â
âFor people who donât know much about Huntingtonâs disease tell us, what are the symptoms of the disease?â
âActually it is a hereditary disease so 50% of those who have it, their children are affected. And it takes somebody from being normal to not being able to walk and talk until they end up dying from it.â
âWhy are you at the Woody Guthrie 100th birthday tribute?â
âWell actually Woody himself died from Huntingtonâs as well as his mother. So weâre here supporting Woody and his family who was very involved. They have their own foundation for Huntingtonâs disease and weâre here just raising awareness.â
âIf people want to get involved what can they do?â
âThey can either contact Huntingtonâs disease Society of America at hdsa.org or they can contact myself. My email is Marilynmm@hotmail.com and I would be happy to help anyone out.â
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