Advocates inform concertgoers about the affliction that killed Woody Guthrie: Huntington's Disease listen07/17/12 SeÃ¡n Kinane
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The hereditary brain disorder known as Huntington â€™s Disease afflicts about 1 in every 10,000 people in the U.S. Thatâ€™s according to the Huntington â€™s Disease Society of America.
Local representatives passed out information about medical research and genetic testing for Huntingtonâ€™s at last Saturdayâ€™s Woody Guthrie 100th birthday celebration hosted by WMNF.
n the 1960s, Guthrie died of complications resulting from Huntingtonâ€™s.
WMNF spoke with Marilyn McCloskey, president of the Central Florida affiliate of the Huntingtonâ€™s Disease Society of America at Skipperâ€™s Smokehouse in between music sets, so thereâ€™s a little bit of background noise.
â€œMy name is Marilyn McCloskey, president of the Central Florida affiliate of the Huntingtonâ€™s Disease.â€
â€œWhat does your group do?â€™
â€œWe are the Central Florida affiliate and we raise awareness and support for the Huntingtonâ€™s disease from Orlando to the Tampa Bay to Gainesville down to Bradenton.â€
â€œFor people who donâ€™t know much about Huntingtonâ€™s disease tell us, what are the symptoms of the disease?â€
â€œActually it is a hereditary disease so 50% of those who have it, their children are affected. And it takes somebody from being normal to not being able to walk and talk until they end up dying from it.â€
â€œWhy are you at the Woody Guthrie 100th birthday tribute?â€
â€œWell actually Woody himself died from Huntingtonâ€™s as well as his mother. So weâ€™re here supporting Woody and his family who was very involved. They have their own foundation for Huntingtonâ€™s disease and weâ€™re here just raising awareness.â€
â€œIf people want to get involved what can they do?â€
â€œThey can either contact Huntingtonâ€™s disease Society of America at hdsa.org or they can contact myself. My email is Marilynmm@hotmail.com and I would be happy to help anyone out.â€